After blogging long enough, I imagine that we'd all stumble upon (or be stumbled upon) people who share something in common with us, the reason our blogs exist in the first place. At least, that's how it's been for me.
One of the people whom I've become especially attached to is Beaux, a father, husband and name on a liver transplant waiting list until March 8th this year, when he finally had a transplant. Beaux is an inspiration to me, the way he persevered through myriad difficult symptoms caused by cirrhosis. His angel of a wife, Lo, blogged for a while after his transplant and kept those of us in cyberland updated about his progress.
But I'm worried. The last post on his blog, from Lo, was April 23. At that point docs thought he might have CMV.
Beaux, I'm praying for you, Lo and your daughters. I'm worried and would love a quick little "All's OK" or "Things suck."
I hope anyone who stumbles upon my blog will join me in sending good wishes and healing prayers to Beaux and his family.
Thanks.
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What didn't the doc tell me? Plenty! Due to cirrhosis caused by hepatitis C, I had a liver transplant and my world was forever changed. Doctors explained the risks and said it would be tough, but their warnings didn't begin to adequately prepare us for what laid ahead.
This blog describes my experiences and what I've learned, including the things my docs didn't tell me. I created it to be a place for learning, complaining and celebrating while traveling our difficult journeys.
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About Me
- Jay
- Florida
Married to Gene, a wonderful, caring man
Blessed with two awesome children - a son and a daughter, both of whom attend college
Former marketing and PR consultant and freelancer, now receiving Social Security Disability benefits
Resources
- Adult MELD Score Calculator (OPTN website)
- Guide to Liver Blood Test Results
- HCV Advocate
- Liver Connection Patient Newsletter from Columbia University Center for Liver Disease and Transplantation
- OPTN Transplant Waiting List Data (available by Transplant Center)
- Scientific Registry of Transplant Recipients (transplant statistics)
- Understanding Lab (Blood) Tests
2 comments:
Jay,
Thanks so much for your latest post. I am doing well all considering. I have a very sore stomach ache and I am struggling with the virus and liver rejection. The Doc's are taking me off prograf and putting me on the older drug so they can get me ready to start treating the virus. Not sure when though. We talked about the Fall, but it might be sooner. My coordinator called me about 7:00 tonight and informed me that they are changing my prescription first thing in the morning. I haven't been writing because my laptop needs a new battery. Take good care of yourself.
Beaux
Pre-transplant (Feb, 2011) I was CMV free. My donor was tested and found to be CMV positive. I was given an anti-viral for the first month and my body adapted fine. My heart goes out to those who don't have it so easy.
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