Why add another site to the blog universe?
Because I'm looking for answers and can't find them. I underwent a liver transplant nearly two years ago and both before and after, I found it far too difficult to find the information I needed or wanted. This blog is about what doctors didn't tell me.
For others seeking answers to questions like mine, I hope this blog can help. There is so much the docs can't or won't share - but I can share and I'm happy to do so.
And to those undergoing a similar journey, God bless you and the people who love and care for you. I wish you all the best. But just in case, buckle up - it can be an awfully bumpy ride.
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What didn't the doc tell me? Plenty! Due to cirrhosis caused by hepatitis C, I had a liver transplant and my world was forever changed. Doctors explained the risks and said it would be tough, but their warnings didn't begin to adequately prepare us for what laid ahead.
This blog describes my experiences and what I've learned, including the things my docs didn't tell me. I created it to be a place for learning, complaining and celebrating while traveling our difficult journeys.
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About Me
- Jay
- Florida
Married to Gene, a wonderful, caring man
Blessed with two awesome children - a son and a daughter, both of whom attend college
Former marketing and PR consultant and freelancer, now receiving Social Security Disability benefits
Resources
- Adult MELD Score Calculator (OPTN website)
- Guide to Liver Blood Test Results
- HCV Advocate
- Liver Connection Patient Newsletter from Columbia University Center for Liver Disease and Transplantation
- OPTN Transplant Waiting List Data (available by Transplant Center)
- Scientific Registry of Transplant Recipients (transplant statistics)
- Understanding Lab (Blood) Tests
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