Holy smokes! It's been a month since my last post and there is much to tell. I'll start with my disability application - I've learned a lot.
Even before the mail arrived, I received a call one morning from a Social Security respresentative telling me that she had received my file the previous day and that because of my illness/condition (liver transplant), review of my file was being expedited. Huh? Awesome!
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What didn't the doc tell me? Plenty! Due to cirrhosis caused by hepatitis C, I had a liver transplant and my world was forever changed. Doctors explained the risks and said it would be tough, but their warnings didn't begin to adequately prepare us for what laid ahead.
This blog describes my experiences and what I've learned, including the things my docs didn't tell me. I created it to be a place for learning, complaining and celebrating while traveling our difficult journeys.
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About Me
- Jay
- Florida
Married to Gene, a wonderful, caring man
Blessed with two awesome children - a son and a daughter, both of whom attend college
Former marketing and PR consultant and freelancer, now receiving Social Security Disability benefits
Resources
- Adult MELD Score Calculator (OPTN website)
- Guide to Liver Blood Test Results
- HCV Advocate
- Liver Connection Patient Newsletter from Columbia University Center for Liver Disease and Transplantation
- OPTN Transplant Waiting List Data (available by Transplant Center)
- Scientific Registry of Transplant Recipients (transplant statistics)
- Understanding Lab (Blood) Tests
2 comments:
That sounds distressing. I sure hope that you get some news real soon.
I'm sorry to hear that. Just as one door closes, another one will open. I'm sure you will receive some good news soon.
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